Our Story

HBDCA provides you, your family and caregivers with expert, psychological support that will enhance the medical care you receive. Our counsellors and therapists have deep insight into the issues you and your family may experience and offer a safe and empathetic space in which to discuss them whilst also exploring with you useful coping tools.

HBDCA will provide this care through Wellbeing Workshops and with one to one counselling sessions. Initially these will take place in London but we intend to expand this support eventually to four hubs across the UK. All our services are free!

HBDCA will collaborate with haemophilia centres across the UK and their multi-disciplinary teams, to provide free psychological support as part of a holistic package of care to individuals affected by a bleeding disorder, their family members and caregivers.

As well as the provision of psychological services, HBDCA aims to become the natural home for counsellors working in this field. HBDCA will develop a network of counsellors to implement this provision nationwide.

Although initially based in London, the intention is for HBDCA to set up four counselling hubs across the UK. HBDCA consultants will travel to these locations to enable people access to these services in their own locality.

HBDCA provides:
  • Counselling for individuals
  • Counselling in a group setting i.e. for Mums of newly diagnosed children, for people with an inhibitor, or for bereaved family members of someone lost through contaminated blood
  • Wellbeing work-shops on issues important to the bleeding disorder community with a focus on mental wellbeing and the provision of coping strategies
  • Training for existing counsellors and for new counsellors wishing to enter the bleeding disorder arena.
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