The UK Haemophilia Society have referred members for the first time to HBDCA services, acknowledging the challenging times in which we find ourselves with Covid-19. HBDCA CEO, Christina Burgess, said: “I am delighted that The Haemophilia Society has shared, with its members, our HBDCA initiative to offer free crisis support during the Covid-19 pandemic. It […]
We’re thrilled to announce today Ros Cooper as HBDCA’s Ambassador. We are delighted to have Ros’ passion and voice as we strive to provide crucial access to psychological support for the UK’s bleeding disorder community. Ros was just a baby when she was diagnosed with severe von Willebrands disorder, and during her university years discovered […]
On 10th November, in conjunction with Local Families with Bleeding Disorders, HBDCA ran an informal wellbeing event in London. In the beautiful grounds of the Royal Foundation of St Katherine, Limehouse, participants had the opportunity to meet with other parents and carers who are living with bleeding disorders and try their hand at a variety […]
On Friday 8 November 2019 in partnership with the Royal London Hospital Haemophilia Centre, HBDCA will run our Life-coaching Wellbeing Day from 10am – 4pm. We are thrilled to welcome guest speaker Chris Moon who will invite participants to explore issues and emotions around lack of self-confidence, anxiety about the workplace or employment, and the […]
The Infected Blood Inquiry opened new evidence sessions on October 8 2019, beginning to hear the stories of those affected by the contaminated blood scandal. Relatives of victims and survivors are demanding answers from health officials on what was known with regards the risk of infection. Throughout the 1970s and 1980s many of those living […]
On Fri 23 November 2018, HBDCA held its first pilot half-day Wellbeing Workshop held on behalf of the Royal London Hospital Haemophilia Centre at the Holiday Inn, Whitechapel. Two weeks prior to the workshop, an HBDCA questionnaire was sent out to ten potential participants by the RLH to establish issues and topics that might need […]
On 27 Sept 2019, HBDCA ran its first Newly Diagnosed Family Day at the Royal London Hospital Haemophilia Centre. Ahead of the workshop, HBDCA sent out a questionnaire to potential attendees with a note explaining the purpose and scope for the session. For many families with a history of bleeding disorders, their child’s diagnosis can […]
HBDCA is holding its inaugural Wellbeing Workshop on Friday, 23 November, in collaboration with the Royal London Hospital.